We are Karen and Demos from Melbourne Australia
The story of Cocooned, begins with the birth of our youngest child, Sophie.
At the end of 2013, Sophie was born with a Complex Congenital Heart Defect (CHD), and required her first open-heart surgery at just 4 weeks old.
What followed was an extremely stressful and upsetting time for all of us. Sophie had many complications post surgery, which resulted in an extended stay in ICU and six long weeks in hospital.
When we were finally able to bring her home, something still wasn’t right. It took three visits to emergency, more hospitalizations and a ride in an ambulance before it was discovered that she required emergency surgery to remove a section of her bowel. Another stint in ICU, and stay in hospital after surgery for a Stoma (or colostomy). Then back again six weeks later to have the Stoma reversed. By this time, Sophie was just six months old.
Then came an agonizing wait to have to go through it all again for her second open-heart surgery, which was performed in May 2015. Thankfully this surgery went off without a hitch.
Through all of this, there were many things taken away from us as parents. During her time in hospital, we weren’t able to hold our child, bathe our child or even change her clothes without the assistance of trained medical staff.
Along with this, came a steady stream of doctors, nurses and even students, requiring access to Sophie, in order to perform tests, procedures and routine checks. This meant that she was constantly being dressed and undressed (usually right after she had finally fallen asleep!). This was terribly unsettling for both our daughter, and for us. We scoured stores and the Internet for a solution, something we could dress her in, however we failed to find anything appropriate. On more than one occasion, we found ourselves saying to each other ‘someone should do something about this’
Sophie is now an extremely feisty 3 year old, and while we are unsure of what the future holds for her in terms of further surgeries, we know that there are so many other families out there right now, going through what we have been through.
At Cocooned, we believe that all children should be wrapped in love, when handled with care.